A Caregiver’s Guide to Long-Term Care Planning

In the United States, nearly 53 million adults are family or informal caregivers, according to the latest data from AARP. That’s 1 in 5 Americans who are caring for aging family members, friends, spouses, neighbors, or other loved ones who have disabilities, chronic illnesses, or otherwise need assistance with daily living or medical tasks. Most of these caregivers are women, and most are over the age of 50. 

This October, during Long-Term Care Planning Month, we encourage caregivers to consider the long-term care needs of those they are caring for and how they can plan for the future.

Understanding Long-Term Care Planning

Long-term care planning involves putting services in place to care for a person’s medical or personal care needs when they can no longer perform these activities on their own. 

These needs might include assistance with activities of daily living such as bathing, dressing, eating, and toileting. You might also need to consider medical needs such as medication management, wound care, and assistance with medical devices that may need to be taken into account. 

There are several types of long-term care options available, depending on the individual’s needs and preferences. These options include:

• In-Home Care: In-home care allows for personalized care and maintains the individual’s independence. Most people desire to stay in their own homes for as long as they can, the MI Choice Waiver Program provides long-term, in-home supports and services and is one of several options in Michigan to make this possible. Contact us, and our staff will help you take control of the care you or your loved one receive. 
• Assisted Living Facilities: Assisted living facilities offer a residential setting for individuals who need assistance with daily activities but do not require skilled nursing care. These facilities typically provide meals, transportation, social activities, and personal care services.
• Nursing Homes: Nursing homes provide 24-hour skilled nursing care for individuals who have complex medical needs or require constant supervision. These facilities offer a range of medical services, including medication management, wound care, and rehabilitation therapy.
• Adult Day Care Centers: Adult day care centers provide daytime care for older adults and adults living with disabilities who need supervision and assistance with activities of daily living. These centers offer social activities, meals, and transportation services, allowing caregivers to work or attend to other responsibilities.

For those who choose long-term care facilities, you should know about the Michigan Long Term Care Ombudsman Program (MLTCOP). This program is a free service that advocates for residents’ rights in long-term care facilities. An ombudsman can help residents with various issues, including resolving disputes with staff, obtaining needed services, and protecting their rights. For more information and to find your local Ombudsman, visit mltcop.org. 

Assessing Needs and Preferences

One key step in long-term care planning is assessing needs and preferences, and the best time to start is well before you need it. Whether the services you need are for yourself or someone else, planning early will provide you with the opportunity to think through what you or your loved one needs and wants as they age. 

As you assess your needs and preferences or those of your loved one, consider these factors:

• • Health needs: You’ll want to think through your loved one’s current and potential future health needs to develop a comprehensive long-term care plan that addresses their medical, physical, and cognitive requirements.
  • General preferences: You’ll need plenty of open, honest communication with your loved one when assessing their general preferences during long-term care planning. You’ll need to address their desired level of independence, social activities, and personal interests to ensure the care plan aligns with their wishes and values.
  • Other lifestyle factors: Your loved one’s lifestyle needs to be considered as you make a plan, including their desired level of independence, social interaction, and daily habits like dietary preferences, exercise habits, and sleep patterns. Again, the importance of open, honest, loving communication as you discuss these things cannot be overstated. 

Financial Planning for Long-Term Care 

Long-term care can be expensive, and the costs can quickly add up. It’s important to start planning for the financial aspects of long-term care as early as possible. Here are some things you should think about: 

• Long-Term Care Insurance: Consider purchasing long-term care insurance to help cover the costs of care. This type of insurance can provide financial protection in the event that you or your loved one needs long-term care services.
• Government Programs: Explore government programs that may be available to help pay for long-term care. In the United States, Medicaid and Medicare may provide some coverage for long-term care services.
• Personal Savings and Investments: Set aside personal savings and investments to help pay for long-term care. Consider working with a financial advisor to create a plan that meets your specific needs and goals.
• Family and Friends: Discuss financial responsibilities with family members and friends who may be involved in providing care. Open communication about financial expectations and contributions can help prevent misunderstandings and conflicts down the road.

Your best course of action is always to work with a long-term care planner or elder law attorney to create a comprehensive plan that addresses your loved one’s financial needs and preferences as well as your own. 

Legal Considerations When Long-Term Care Planning

In addition to financial planning, there are several legal considerations to keep in mind when planning for long-term care. These include:

• Durable Power of Attorney: Allows you to designate someone to make decisions on your behalf if you become incapacitated. This document is particularly important for long-term care planning, as it ensures that someone you trust can make decisions about your care if you cannot do so yourself.
• Healthcare Proxy: Allows you to designate someone to make decisions about your medical care if you become incapacitated, ensuring that your wishes are respected regarding your medical treatment.
• Living Will: Outlines your wishes regarding end-of-life care to ensure they are respected if you cannot communicate them yourself.
• Guardianship: If you cannot make decisions for yourself and do not have a durable power of attorney or healthcare proxy in place, a court may appoint a guardian to make decisions on your behalf. This can be a costly and time-consuming process, so it is best to avoid it if possible.

As a caregiver, it’s crucial to seek the guidance of an elder law attorney to ensure your loved one’s wishes are honored and their assets remain protected. A comprehensive care plan developed in conjunction with a legal expert will alleviate stress and worry in critical moments, so you can focus on being with your loved one in the moment. 

The Senior Alliance Caregiving Haven: Resources to Help

Creating a long-term care plan can be daunting, but it’s essential to ensure that your loved one’s needs are met and your family is prepared for the future. The earlier you start planning, the more time you’ll have to make informed decisions and secure the supports you and your loved one need.

At The Senior Alliance, we understand the challenges that caregivers face, and we’re here to help. Our Caregiving Haven offers a wealth of resources and support to start making planning easier, including our customizable Caregiver Binder, where you can collect the documents and information to help you manage your loved one’s care, and the Senior Alliance’s Caregiver Guide with more in-depth information about where to start in your caregiving journey.

Don’t wait until a crisis strikes to start planning for long-term care. Contact The Senior Alliance today, and let us help you navigate the complexities of long-term care planning so that you can focus on what matters most – caring for your loved one.